Pietro’s Fight | Duchenne Muscular Dystrophy

Pietro’s Fight | Duchenne Muscular Dystrophy

Look at this handsome boy.  This is Pietro Scarso, just 2.5 years old.

Pietro's Fight

What a bright light.  I mean just look at this FACE.  You are probably smiling back at this child, right?   His adorable brother Nico is beside him.  They’re 15 months apart.

These boys are inseparable.

pietros fight

Pietro is a loving, sweet boy.  He absolutely loves legos.  I mean he

LOVES   -   ALL    -    things   –   lego and…    he loves life!

  • He loves Lego World
  • His favorite movie is Lego Movie.
  • He considers himself a master builder.
  • He’s calm and he’s patient
  • He loves to EAT
  • and dance!  They have a nightly dance off after dinner! AKA his dance room

pietros fight

I loved photographing them for their Christmas photos over the years.  Its always so much fun to watch children play together.  Boys seem to explore the world inch by inch.

He was born on May 14th, the same day as my son Luc.  I joke my son is the best of our 3 kids.  haha

Pietro is now 5 1/2 years old.  He’s a kind and gentle soul.  Dayna’s favorite memory of her son as a child is watching him in his highchair. He would just watch tv and grab whatever food was on his plate.

And eat…    and EAT and eat!  

He wouldn’t even look at the food, just eat whatever was in his hand.

But today, Pietro faces a lot of challenges.  He has trouble going up and down stairs.  He can’t play with children or ruff house.  He can’t exert himself like most boys could.  In the Summer of 2012 they found out Pietro had a rare disease.

—- JULY 2012 —-

My friend & client Dayna found out Pietro had a rare lethal disease just 8 months after I met them.  She started a foundation called Pietro’s Fight Pietrosfight.org when her son was diagnosed with Duchenne Muscular Dystrophy (DMD). DMD children are confined to a wheelchair by the time they are 12 years of age, and succumb to the disease in their late teens due to respiratory complications. To date, there is no acceptable treatment or cure for DMD.

Like every parent, Dayna and her husband prayed for a healthy baby, and worried about the usual diseases and disabilities. Duchenne Muscular Dystrophy affects one out of 3,500 boys each year worldwide, but they had never heard of it.

They noticed Pietro was having difficulty on the stairs and made an appointment with a pediatric neurologist just 2 years ago. Hearing the doctor say that Pietro had DMD they looked at her as their eyes filled with tears.

Pietro will face many challenges in the next 5+ years. The progression of the disease is that children with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. Although Duchenne is the most common fatal genetic disorder to affect children, there is NO cure. The simplest of tasks become difficult, and in the later stages, heart and breathing muscles begin to fail.

Nearly 20,000 boys are living with the disease in the United States alone, and over 300,000 worldwide.

One of Dayna’s goals at Pietrosfight.org is to urge the FDA to approve a drug that has been in clinical trial in boys for the last 3 years called Eteplirsen.  This drug is shown to slow down the progression of the disease and has defied the natural history of DMD.  Twelve boys currently in the trial are now in their teens and in most cases should have been in wheelchairs, but are NOT.  Instead, they’re walking, playing sports, and doing things that shouldn’t be possible for a DMD boy.  Sarepta’s timeline has been delayed for a Duchenne Muscular Dystrophy drug as the FDA is now requiring additional data as part of the submission. We are asking the FDA to enact Fdasia which was put in place by the FDA and Congress for fatal diseases with no cure.  The drug has been tested for 3 years and is only showing positive results. Instead of the application being submitted by the end of 2014 this means it is now being pushed back to mid 2015.

“When did we lose our right as parents to know what’s good and bad for our children. Why can’t we decide our child’s well-being. This trial is the hope we see for Pietro’s future, if data is showing it safe and effective, what’s the problem FDA?” Dayna Scarso, Pietro’s mom.

Here are few of my favorite photos of these handsome brothers.  PLEASE consider donating today HERE: http://www.pietrosfight.org/donate/

nj family photographer

pietros fight

Please help support Pietro’s Fight !pietros fightpietros fight

Please help support Pietro’s Fight !pietros fightpietros fight

pietros fightpietros fight

PLEASE consider donating today HERE: http://www.pietrosfight.org/donate/

~Natalie

Je Revele Fine Art Photography Studio & Gallery specializing in baby photos in New Jersey

433 River Road  |  Highland Park, NJ 08904 |  Studio: 732-964-3773                                                                                       

Website:  www.jerevele.com |  Blogwww.blog.jerevele.com

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International Award Winning Photographer

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Awards for Staten Island Top Women in Business | Natalie Licini

Awards for Staten Island Top Women in Business | Natalie Licini

I have to admit when Lori called to tell me that I had been nominated as one of the Top 40 Women in Business in Staten Island I was speechless.

And when I walked into the reception last night, I was completely overwhelmed sitting beside other awardees including the executive director of Staten Island University Hospital, NY State assembly member, the founder of Hospice Care, A Friendly Face, the Seton Foundation and many of Staten Island’s most respected businesses including the owners of Nicotra’s Ballroom, Party Party Party, Safari Realty, AF Bennett Salon, & Casandra Properties & many more.

In 2010 I was introduced to someone who became very near and dear to my heart.  Camille Loccisano.

Camille lost her son Frankie at the young age of 17.   Camille’s foundation Frankie’s Mission in memory of Frankie helps families whose children are suffering from pediatric cancer.  All the proceeds raised go directly to the children and their families.  In 2011 they helped 40 individual families.

I want to share Frankie’s story with you in hope that you support their foundation and the upcoming fundraisers.  PLEASE help support Frankie’s Mission today by donating online: http://www.frankiesmission.org/support-us/make-a-donation-online/

About Frankie:

This  September of 2014 marked seven years that Frankie Loccisano lost his life to cancer.

Frankie was born and raised in Brooklyn, New York, the oldest of three brothers. A leader from an early age, he enjoyed popularity among his many friends and he loved to play sports.  A very bright student, he attended Xaverian High School where he studied in their prestigious IB Honors Program with a goal toward attending Princeton University.

A lover of the political arena and a talented creative writer, Frankie was an avid novel reader and he enjoyed the fine works of great authors. The NY Yankees and NY Giants were his teams. He loved Robert Deniro films, online role-play and Friday night card games with his buddies. He enjoyed a good and fair political debate, and he was an extremely articulate speaker. Studying law and practicing as a public prosecutor was a very serious goal for him. He also had thoughts of entering into a political career in his later years. He was a tremendous advocate of civil rights and human dignity. His political views were moderate and his oft repeated words were “Depends on the issue!”

At the age of 14, Frankie was diagnosed with bone cancer and then leukemia,  he endured extremely invasive treatments, countless surgeries, and  constant procedures during a span of 27 months. Through it all, Frankie demonstrated an unmatched courage and an indomitable and prayerful spirit.  As an older pediatric patient, he greatly understood the enormity of what it meant to be so young and fighting for life instead of enjoying life. It is in this spirit and in Frankie’s memory that his foundation carries out its important mission. So important was this mission to Frankie, that they were among the last words he communicated to his family and friends.

Now, in his name and memory, we will raise funds and awareness to help families and children who are fighting the same illness. Join us and help to make a real and true difference!

AWARDS FOR STATEN ISLAND TOP WOMEN IN BUSINESS

Receiving this Awards for Staten Island Top Women in Business is truly an honor!AWARDS FOR STATEN ISLAND TOP WOMEN IN BUSINESS

With gratitude,

Natalie

Je Revele Fine Art Photography Studio & Gallery

433 River Road  |  Highland Park, NJ 08904 |  Studio: 732-964-3773                                             

Website:  www.jerevele.com |  Blogwww.blog.jerevele.com

LIKE us on Facebookhttps://www.facebook.com/JeRevelebyNatalieLicini   

International Award Winning Photographer

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Giving Thanks | A New Jersey Family Photographer

Giving Thanks | A New Jersey Family Photographer

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I want to post an early Thanksgiving message to THANK all of our clients this year and in prior years. There are a lot of photographers out there and the fact that our work stood out enough for you to choose us means the world to me.

My friend Lynn Cartia said it best:

“People hire a photographer because they want to remember a moment in time.
They hire a photographer because they know their child (or they) will never look like this again.
They hire a photographer because they know that it’s been ten years since their family was together last
and they don’t know when the next time will be.
They hire a photographer when they are uniting two hearts into one.
Simply put, they hire a photographer because what they want photographed is important to them.”

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Photography is one of the few tangible items that remain long after your children are grown. So many things in life will be gone and long forgotten, but pictures remain forever.

Thank you from the bottom of my heart for a great year. I wish you all a healthy & happy holiday season.
~Natalie

new jersey family photographer

If you’re looking for a new jersey family photographer and want to commission a fine art for yourself or your family, please call us anytime at 732-964-3773.  We’d be happy to answer any questions you may have.

We serve as a New Jersey Family Photographer in the NYC Metro area & beyond and also specialize in family photography, child photography, pregnancy photography, boudoir photography and NJ boudoir as well as wedding photography.

Je Revele Fine Art Photography Studio & Gallery

433 River Road  |  Highland Park, NJ 08904 |  Studio: 732-964-3773                                                                                    

Website:  www.jerevele.com |  Blogwww.blog.jerevele.com

LIKE us on Facebookhttps://www.facebook.com/JeRevelebyNatalieLicini   

International Award Winning Photographer

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Leah MacDonald | Art & Inspiration Workshop

Leah MacDonald | Art & Inspiration Workshop

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As an artist, I often feel pulled and pushed in new directions.  It’s an exciting roller coaster to make something and put a piece of you into your art.  It’s scary too.

Every year, I hope to attend one workshop. Sometimes two.  I want to push myself and take my work to the next level.  

I was introduced to encaustics through Jennifer Hudson’s 2011 workshop with one of my best friends Peggy. It was an incredible experience, but difficult beyond belief to create a piece.  I deeply admire my friend Peggy’s work and when she introduced me to Leah MacDonald, I was excited to hear that she taught an art workshop with wax, paint and encaustics not far from my hometown.

Leah is a multi-talented artist, photographer, mother of 2 who makes these incredibly beautiful albums, which should be called treasures instead of albums.  I can’t describe them with words, as they contain photos, memories, notes, poems and so much more than you could imagine.  They’re so unique.  Check out her site: http://www.bliss-etc.com/book-arts/allisons-delite-book

THE WORKSHOP

Leah MacDonald was such a kind and thoughtful teacher. She was so welcoming opening her home and studio up to Peggy and I this week customizing everything, ensuring we were at home, feeding us and answering our 15,000 questions.  Her energy and positivity was infectious.

She introduced us to the process, the tools and options.  She taught us how to look at a piece and work with it until we love it.  This is an ancient media, but she helped us understand the possibilities and gave us confidence to dive right in and make something beautiful.

During our workshop we learned to make art with wax, oil paints and pigments and encaustics too. We used pottery tools, mounted our prints and created art from scratch.

It was very scary at first.

But Leah guided us and answered our every question and suddenly we were creating on our own.  Well, with help initially.  Hehe

It was so exciting.  My portrait was transformed into a piece of art that I was so proud of.  This is one of my favorite pieces.  Its 16×20 mounted on wood.

Natalie Licini, Leah MacDonald Workshop

It was such an incredibly inspiring two days with Leah MacDonald.  I learned so much and can not wait to make art pieces for myself and for our clients at Je Revele.  I’m ordering supplies and can not wait to try this again next week in my studio.

Thank you Leah for opening up your heart and your home and sharing so much with Peggy and I.

Natalie

Je Revele Fine Art Photography Studio & Gallery specializing in New Jersey Boudoir Photos

433 River Road  |  Highland Park, NJ 08904 |  Studio: 732-964-3773                                                                                     

Website:  www.jerevele.com |  Blogwww.blog.jerevele.com

LIKE us on Facebookhttps://www.facebook.com/JeRevelebyNatalieLicini   

International Award Winning Photographer

 

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Teresa Napolitano| Real Housewives of NJ | Boudoir Photos NJ

Teresa Napolitano| Real Housewives of NJ | Boudoir Photos NJ

Late this Summer the gorgeous twins Teresa Napolitano and Nicole from the Real Housewives of New Jersey visited our historic castle studio in New Jersey.  We planned a two part session together.

It was wondering getting to know these ladies.  They have such an incredible family and relationship.   I don’t have a sister, just two brothers myself.

I think its such a rare gift to be best friends with a sibling.

Someone to be a sounding board…

to laugh together with,

shop with and love life.

They’re both so optimistic and genuine.  I had a blast photographing them with Kristin.

Today, I’ll be revealing a few of Teresa’s gorgeous boudoir portraits.  Stay tuned for Nicole’s.  Thank you to our insanely talented hair and makeup artists Michelle Ernest who has been with me for over 3 years and Jackie Allen our new powerhouse stylist.

These beautiful women have children, AND they also have incredible personal trainers.  AND great genetics.  I rarely see abs when photographing women.  Teresa is so toned it inspired me to put down the brownie while I was writing this blog.  He he

 

Teresa NapolitanoTeresa NapolitanoTeresa NapolitanoTeresa NapolitanoTeresa Napolitano

Revered as a luxury photography studio in the NYC metro area, Je Revele lives up to this distinction through unforgettable experiences, unparalleled customer service, quality craftsmanship and continuous innovation in the photography genres.  A Je Revele portrait is recognizable in the style, execution, finish and level of excellence.

Nothing less than perfection is accepted in the creation of their legendary fine art portraits. Their signature style is elegant and timeless, which often times makes them treasured family heirlooms that are passed down from generation to generation.

For many Je Revele fine art portrait owners, their photographic art is more than a portrait looking back on years past, it is a beloved art piece that is rich with family history and infused with memories. The attention that is paid to the design, aesthetic and execution of each Je Revele portrait is unprecedented in each step of the process; from the pre-consultation, through portrait session and execution.

To own such a distinct piece of photographic art is a treasure; many of the Je Revele client’s cherish.  Je Revele is a family owned fine art studio and gallery creating the finest photographic art in the metro area since 2011, located in Highland Park, New Jersey.

Teresa Napolitano

If you’re looking for a boudoir photographer, please feel free to call or visit our studio to meet our team and see our picturesque castle studio.

Also featured on our Je Revele blog: http://blog.jerevele.com/teresa-napolitano-nicole-napolitano-new-jersey-boudoir-photos/

Natalie

Je Revele Fine Art Photography Studio & Gallery specializing in New Jersey Boudoir Photos

433 River Road  |  Highland Park, NJ 08904 |  Studio: 732-964-3773                                                                                     

Website:  www.jerevele.com |  Blogwww.blog.jerevele.com

LIKE us on Facebookhttps://www.facebook.com/JeRevelebyNatalieLicini   

International Award Winning Photographer

 

new jersey boudoir photography

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